Parotid Problems Part 2

I’ve had issues with my saliva glands, also known as the parotid glands. In 2013 I had to have the right parotid gland removed because there was a stone in there that was blocking the path for my saliva to enter into my mouth, so the gland was filling up with saliva, which caused it to swell up, which is very painful. Over the years my left parotid gland has gotten bigger, and had occasionally caused issues, but never this bad.

We went to the emergency room yesterday to get some antibiotics, because you can’t just go to the pharmacy for antibiotics. You need a prescription. So they told me to also follow up with my doctor so I can get the referral to a surgeon who will order all the tests so they can determine if I should have surgery and I’ll have to wait for approval from my medical insurance company. This could literally take several months. Several months that I’ll be in so much agony every day when I eat.

Eating is what causes this. So far I’ve discovered sweet and salty foods are causing my problems the most because sweet and salty foods cause you to generate saliva. Also chewing itself causes it to swell up. I googled what I can eat that doesn’t generate saliva and it said breads, fiber and oats. I had some toast and just chewing the toast caused it to swell up. So I had some malt-o-meal, which is not sweet and I don’t have to chew it, just swallow it. We have oatmeal, but it’s maple and brown sugar and I was afraid the sweet flavor works cause problems.

I have a heating pad that I place on my face to bring the swelling down. That worked great yesterday, but it’s not helping that much today. The swelling is so bad that I can’t touch my teeth when I bite down.

Here is a picture from when my right parotid gland was swollen from this same issue.

Here is a picture from after I had the surgery.

So yeah. I’ll go through that again. At least I hope so. I hate the thought of going through this again, but I’m literally going through the pain that led me to having this surgery again. So even though it’s not pleasant to look at, it’s necessary so I don’t have this horrible pain.

And don’t worry. I’ll still have glands under my tongue to produce saliva.

New problem seems to be no problem

I mentioned in a previous post that I was having complications from my recent surgery to remove my parotid gland. The problem was that I am still generating new saliva which is causing some pain when it fills up too much and because it doesn’t drain into my mouth, but instead my neck.

I have an update on the issue. It doesn’t seem to be getting too big and I can feel it drain on its own without me having to push on it to milk it, for the lack of a better word. How it does it is very strange, it feels like sweat is running down my face along the scar along my ear. Although I am not positive that that is what it is, that could just be my scar tingling as it has been doing. I am feeling it right now as I type this because I just ate a bowl of cereal which generated some saliva in the gland.

I actually don’t know where the saliva would drain from that gland.  When I have pushed on it before, I feel a vein bulge inside of my mouth which is near where the parotid gland used to be in front of my earlobe, so it is possible that there is a vein, or tube or whatever you want to call it that allows the saliva to travel to reach its destination to release somewhere.  Perhaps that was releasing into my parotid gland which would release into my mouth, or perhaps it had a tube in common with the parotid gland, which is now gone since the parotid gland is gone.

So I don’t think that I have much to worry about. It seems to be correcting itself, despite how freaking strange it feels lol.

december 18 2013 When I look into a mirror I don’t even notice it much anymore. I mean, I see a little lump, but it looks normal considering there is still a hole beside it. The hole isn’t even that noticeable anymore. I mean, when I look at it in the mirror with a shadow on it, it’s very noticeable, but I just took a picture using the flash and you can barely see it. All you can really see is the scar, which seems to stand out along my neck. When I touch it with my fingers I can still feel a hole, but it does seem to be filling in.  When you look at the image to the left you can definitely see where the saliva is filling up in the saliva gland which has no exit into my mouth, but instead in my neck.  It’s that little marble sized ball.

I will definitely be speaking to my doctor about what is happening because he told me that there was a collection of “spit” (his words) that has collected and it will be absorbed into my body, but it’s nothing to worry about.  The very fact that it is still collecting, or generating new “spit” that is draining into my neck seems like it should be something that I should worry about, but I am sure it is hardly a problem considering if it were draining into my mouth, I would end up swallowing it, so it ends up being absorbed into my body regardless of how or where it drains, so again, I don’t see that much of a problem.

So that seems to be it for now.  My appointment with the surgeon isn’t until March, but my next appointment with my regular doctor is in January. I will mention it to both doctors and if it is an issue then I will post another update, otherwise I don’t see much of a reason to add another update on this because it doesn’t seem to be causing as much of a problem.

Parotidectomy Surgery Complications

glands

It has been 3 weeks since I had my surgery and everything seems to be healing well.  My scar isn’t red and it isn’t too noticeable, except for the scar from the hole from where the tube was draining the fluid for 2 weeks which is quite visible, but disappears with a Band-Aid.

My face and ear are still numb, although the feeling is coming back slowly, but it is coming back.  But it still feels very strange.

The only thing that seems to have gone wrong is that I still have a saliva gland that seems to still be producing saliva with nowhere to go.  According to the image, there are three glands.  Parotid, which was removed, Submandibular and Sublingual.  The Sublingual gland is under the tongue, no problem.  The gland that is still producing saliva is my Submandibular gland which is below where the Parotid gland used to be.  It is still producing saliva, but it is not releasing into my mouth.  Instead of releasing into my mouth, it stores the saliva.

This is a really big issue because that is what my Parotid gland was doing.  It wasn’t releasing the saliva, so I was having to push (or milk) it out of the gland and into my mouth.  I have been trying to do that with this gland, but it is not releasing into my mouth, instead, I can feel it releasing under my skin.  I can tell because it tingles.  I don’t want it to release saliva inside of my body, but if it doesn’t get milked, it just gets bigger and bigger and next thing you know I will be rushed to the emergency room because of how painful it is.

The surgeon told me when I came back last week to have the tube removed that it was just some saliva that will be absorbed by my body, but I had no idea it was still producing more saliva.  I only know it is producing more saliva because I could feel it getting bigger and under more pressure when I ate some chocolate the other day.  Sweet and tangy are what seem to generate a lot of saliva for me, which over the years has been a major issue for me because when I start generating a lot of saliva after drinking orange juice, my saliva gland would get backed up and it wouldn’t release the saliva into my mouth.  That’s what I was trying to get surgery for, forget the stone, I want my saliva to be able to release into my mouth as it normally would without me having to milk it.

I can live without orange juice, which I have lived without for years because I know that sour causes this issue.  The one thing I don’t think I can live without is sweet, because I have a sweet tooth.  I love sweet flavors, such as sweet tea, or sweet coffee, or sweet oatmeal.  I can live without chocolate and cookies and so on, but I can’t avoid other sweet flavors because there is almost always something sweet.

My next appointment with the surgeon isn’t until March, but my next appointment with my regular doctor is next month and he will advise me on what to do.  I just hope by then it isn’t too painful.

I was hoping that my last post on this issue was my very last post.  I guess I jinxed myself by saying it was my last post.  This seems to be a pattern with me though.  I say I will never have to worry about something again, but then it comes back and I have to worry about it some more.  It’s a “if it can go wrong, it will” type of thing.  Murphy’s Law.  Why does Murphy seem to always be hiding in the shadows cursing me?  Darn you Murphy!

I will certainly update this issue if it becomes too unbearable and I end up in the ER or when I see my doctor in January, whichever comes first.