Parotid Problems Part 2

I’ve had issues with my saliva glands, also known as the parotid glands. In 2013 I had to have the right parotid gland removed because there was a stone in there that was blocking the path for my saliva to enter into my mouth, so the gland was filling up with saliva, which caused it to swell up, which is very painful. Over the years my left parotid gland has gotten bigger, and had occasionally caused issues, but never this bad.

We went to the emergency room yesterday to get some antibiotics, because you can’t just go to the pharmacy for antibiotics. You need a prescription. So they told me to also follow up with my doctor so I can get the referral to a surgeon who will order all the tests so they can determine if I should have surgery and I’ll have to wait for approval from my medical insurance company. This could literally take several months. Several months that I’ll be in so much agony every day when I eat.

Eating is what causes this. So far I’ve discovered sweet and salty foods are causing my problems the most because sweet and salty foods cause you to generate saliva. Also chewing itself causes it to swell up. I googled what I can eat that doesn’t generate saliva and it said breads, fiber and oats. I had some toast and just chewing the toast caused it to swell up. So I had some malt-o-meal, which is not sweet and I don’t have to chew it, just swallow it. We have oatmeal, but it’s maple and brown sugar and I was afraid the sweet flavor works cause problems.

I have a heating pad that I place on my face to bring the swelling down. That worked great yesterday, but it’s not helping that much today. The swelling is so bad that I can’t touch my teeth when I bite down.

Here is a picture from when my right parotid gland was swollen from this same issue.

Here is a picture from after I had the surgery.

So yeah. I’ll go through that again. At least I hope so. I hate the thought of going through this again, but I’m literally going through the pain that led me to having this surgery again. So even though it’s not pleasant to look at, it’s necessary so I don’t have this horrible pain.

And don’t worry. I’ll still have glands under my tongue to produce saliva.

Scariest day of my life

Yesterday, October 19th, 2021, was the scariest day of my entire life.

I woke up and went to the bathroom, just like any other day. The only difference is I was having trouble urinating. It was like there was a plug in my urethra preventing the urine from coming out. Except, something was coming out. I stood up and looked in the toilet and there was a long dark, almost black stream going down the inside of the toilet. I turned the light on and I could tell it was blood. I continued urinating standing up and blood just poured out into the toilet.

I went to the living room to tell my life partner that something was seriously wrong. He went into a full on panic because this isn’t something that happens every day. I was in a state of shock, and I was more trying to calm him down rather than worry about the blood in the toilet.

We drove to the doctor’s office to see if they could see us even though today is actually when we have an appointment. They couldn’t see us, so we went home and figured we would just go to our appointment.

I had more urges to urinate, and it was painful. I went to the bathroom and continued urinating blood. Suddenly it started sputtering, and I saw several blood clots, but I continued urinating blood.

We decided to go to the emergency room. They did a CT scan and couldn’t find any reason for why I’m urinating blood. No kidney stones, no infection, no obvious visible reason. The doctor told me that it’s possible I might have bladder cancer, but I would have to go see a urologist so they could run a camera through my urethra to my bladder to look to find the issue.

Last night just before bed I urinated one last time and sudden sputtering again, several blood clots, then regular urine with no pain. This morning I woke up at 5 am to urinate and it was fine. I went back to bed and woke up at around 8:30am and went to the bathroom and everything seems to be back to normal.

This is the scariest thing that has ever happened to me in my life, and I’m 51 years old. I’ve been through a lot of drama and trauma, but this one thing that happened to me yesterday was the worst thing to ever happen.

I don’t drink soda, or alcohol. I drink coffee in the morning and then I drink water the rest of the day. That’s all I drink. So I don’t understand why this happened. Now I can’t even drink coffee because the paperwork from the hospital said no caffeine for awhile.

We go to the doctor today and I’ll show him the pictures of the blood in the toilet on my phone and give him the papers and the CD from the CT scan from the hospital and I’ll have him refer me to a urologist and get that taken care of as soon as possible. That’s not something I want to mess around with. I’ll update this blog when I get new information.

Thank you for reading.

Update October 24, 2021: I woke up this morning, went to the bathroom and it wasn’t painful, but there was blood. I went 4 days with regular normal urine, then it was back, but it was only that one time. I’ve urinated several times since then, but I just wanted to update this to say it happened again this morning. Tomorrow I’m calling the urologist to find out if they got my referral yet and if so, could we make an appointment for as soon as possible. I don’t want to wait too long to fix this issue.

Update November 1st, 2021: I saw the nurse practitioner at the urologist today. He said the CT scan shows I have an enlarged prostate, which the ER doctor apparently didn’t tell me about. I’m now taking Flomax. Not looking forward to those side effects. Anyway, they’ll run the camera to my bladder in december.

Update December 15, 2021: I went to the urologist today and they put the camera into my urethra to my bladder and there wasn’t anything wrong with my bladder. I was able to crane my head so I could look at the TV monitor and he showed me a big lump that was inside my bladder, but he said that that was my prostate pushing on my bladder. Other than that there is really nothing inside my bladder that would give anybody any worry to believe that there is anything wrong with me. As he pulled the camera out, you could see that the urethra was getting smaller because my prostate was pushing on my urethra. So no cancer. No problem.

Smaller Appetite After Surgery

I have always had a huge appetite since I was at least a teenager. At dinner, my mom would always make enough so everyone could have seconds, and I was typically the only one who would actually take seconds. I was so skinny and my mom never understood where that food went because I never gained any weight no matter how much food I ate. I kind of hate my younger self right now lol. I was also active, and when I say active, I mean like gym class, running from the school to escape bullies, then walking home from school. You know, typical teenage angst lol.

So the time of my life I’m referring to was when I was around 13 years old and I was 150lbs. Fast forward to when I was 26 and I was still 150lbs, then I quit smoking and that all changed. Suddenly I was gaining weight because I was discovering how wonderful food was. Before then I was eating to survive on what we could afford. After, I was eating for pleasure, and I wasn’t holding back. I was getting a lot more food than normal and within 2 months of quitting smoking, I had gained 50lbs. So there I was 200lbs with a fat belly all of a sudden and my appetite was out of control, but I was trying not to go over 200lbs.

Over the years I’ve gained weight because of my enormous appetite until I was at my highest last year at 267lbs. I bought a Fitbit Charge 4 watch and a Fitbit Aria scale and I tried working on my weight. When I got the scale I was 265lbs and by January this year I was 254lbs, then the surgeon told me to lose 15-20lbs for my surgery and then I went down to 230lbs. Now after surgery I have gone down to 225lbs.

And now to the subject of this post. I had my surgery where they reduced the size of my colon, which is a nicer way of saying they removed a section of my colon to remove the possibility of colon cancer. But ever since I had my surgery, I haven’t been very hungry. They fed me 6oz of soup and some other things like pudding or jello and some juices and milk. Well, that tiny amount of food and drinks made me feel so full. When I came home from the hospital I was still getting full from such a tiny amount of food. I left the hospital on Thursday and today is Sunday and I’m still getting full from 6oz of soup. I made myself tomato soup, a 3oz glass of sugar free Jell-O and a chocolate pudding cup and I couldn’t even eat the Jell-O or the pudding. It was literally too much food.

This will be to my advantage to help me reduce the size of my stomach. If I eat and I get full fast, then I won’t have the chance to make my stomach too big again, and that will help me lose weight, especially when I go back to eating my Keto food. This will also prevent me from even wanting to go to a buffet because if I’m not hungry for such a huge amount of food, then I won’t be tempted to go, thus I won’t overeat and gain weight again. So I see this as a huge win for me.

How long do you think it will take me to get down to 200lbs if I am 225lbs now? I pretty much lost 22lbs from mid-January to the end of March. So do you think I will be down to 200lbs by June or July maybe? And if I get down to 200lbs by then, I will just keep going and lose all the weight I can possibly lose. I really would like to get back to 150lbs, but I will be happy if I can get down to 160 or 170. When I finally get down to the weight I want to be, I’m going to continue to maintain my weight by eating Keto foods, and if I still lose weight, well then good for me.

I’m home from the hospital

Well, I did it and I survived a week in the hospital lol.

On Saturday, March 27 I started a liquid diet to help empty my bowels for surgery. I had to drink broth for 2 days. Monday, March 29 was my surgery. This is a video on YouTube that shows what they did.

I wasn’t given any food after the surgery. The next day I had a liquid diet, and all my meals made me full.

These were pretty much what I was eating. Cream soups that were less creamy and more watery. My meals were a soup, pudding or Jell-O or ice lemon, milk or almond milk, hot tea or hot coffee, and a juice like cranberry or grape. Oh and breakfast was cream of wheat with no butter or sweetener.

I’m not in any pain. I have to walk around to keep my stomach from turning into velcro. The physical therapist used that word to describe what your insides will do that kind of made me laugh and it also made sense.

I had to lose weight for the surgery and the surgeon said that when he asks his patients to lose weight for surgery, they almost always never lose weight. He was so surprised and happy that I actually lost weight. I went from 254 on January 12 when I first saw him, and I was 230 the day of surgery. I lost 5 more pounds after a week of hospital food. Here’s my weight now.

I am really proud of myself for having the will power to meet this goal and continue losing weight, and I will keep losing more weight so I can lose all the stomach fat. Of course I’ll probably need to maintain a small layer of stomach fat for insulation lol, but there is no reason to stay fat and because it was unhealthy for me.

I have a post opp appointment in 11 days and I’m sure he will reveal my stitches. Everything is bandaged. I can’t take a shower until the bandages are gone. I bought some no rise shampoo/body wash from Amazon to keep me clean. It’s a spray which will make it easier to use.

As I keep saying, just to be clear, I do not have colon cancer and after the surgery, the surgeon told me he found no evidence of cancer. He removed the section of my colon because of colon polyps that they couldn’t remove any other way.

I really appreciate all the likes on my posts about my weight loss progress over the last few months. Thank you for reading.

My weight loss update

I started my Atkins Keto diet on January 12, 2021 at 253lbs per my surgeons request. On February 17, 2021 I had lost 11.6lbs, but then the weight stopped dropping and I had gained a few pounds and I got extremely frustrated.

I wasn’t sure what I was doing wrong. I was always hungry, so I figured I needed a supplement, so I went on YouTube to find out what works, and someone said Apple Cider Vinegar, so I went on Amazon and found something in pill form called Apple Cider Vinegar+KETO in a bottle with 120 capsules. Instructions were to take 2 pills in the morning with food. I did that and the first couple of days it helped me to suppress my appetite, but then it stopped suppressing my appetite and I was always hungry again. So then I bought a bottle of Metamucil with Psyllium Husk Powder and the instructions were to take 2 rounded teaspoons with 8oz glass of water before every meal, and that actually helped to suppress my appetite. I took it for 3 days in a row and started feeling horrible stomach cramps, but I took it for a 4th day and I regretted taking it. I looked on Google for how long you should take Metamucil and it said maximum of 7 days. Well, 4 days was too many for me. Perhaps 7 days if you only take 1 rounded teaspoon before meals.

Yesterday and today I didn’t take anything. No apple cider vinegar, no metamucil and I seem to be doing fine with my appetite. My stomach is still cramping up a lot, but that’s going away. I don’t feel hungry between meals and that’s pretty much the whole point of me doing that, to help shrink my stomach and to help shrink my appetite. I weighed myself this morning and I was 239.4lbs.

My goal is to lose 15-20lbs for surgery, and my appointment with the surgeon is on March 11, 2021 to check my weight to see if I have lost anything to be eligible for surgery, which is in exactly 1 week from today. I am hoping to get down to 233 by then, but I will be happy if I’ve only lost 15lbs. Then of course there will be from the day of my appointment next week until the day of the surgery, and I may possibly have gone down to 233 or lower.

I have to lose weight for surgery, but I want to lose weight for my health sake. I have sleep apnea and I have bad knees, and I’m guessing is due to the fact that I am, or was 100lbs overweight. I’m still at least 90lbs overweight. I was 150 before I quit smoking and gained all this weight, and I don’t expect to go back down to 150lbs, but I’d at least like to get down to 170 again. I know I can do it if I try hard enough, but that all depends on my appetite. I’ve always had a huge appetite since I was a kid when I was skinny and couldn’t gain any weight even if I tried because I was very active.

Of course I will keep this blog updated when I go to the appointment next week and when I have the surgery, and when I lose more weight beyond the surgery.

Oh and just to make it clear, the surgery isn’t for weight loss as someone thought on Facebook. The surgery is to remove some colon polyps that they couldn’t remove during my colonoscopy in September of 2020. I need these extra polyps removed before they turn to cancer. Even if it was for weight loss, I’m sure I do not qualify for weight loss surgery because I am not an extreme case like you see on tv.

CPAP filters on Amazon

I got my CPAP machine from Apria Healthcare in 2019. They were sending me these filters that didn’t look like they were collecting any dust at all. When I removed the filter after two weeks it looked almost identical to the way it looked when I put it in.

I was having such a difficult time getting them to send me new supplies because they were telling me that they didn’t have the paperwork needed from my doctor. I got tired of waiting and using the same filter for almost a year because they weren’t sending me any supplies, so I went to Amazon and bought these new filters from RespLabs. I only paid $10 and it comes with 60 filters which will take me two and a half years to go through since they want me to change the filters once every two weeks.

You can see a used filter on the left side that came from Apria Healthcare, on the right side on the top is a brand new RespLabs filter and below that is after 2 weeks of using this new filter. You can tell there’s a significant difference in the amount of dust that these filters are collecting that is not going into your lungs. The filters that Apria Healthcare were sending me were just not working. Every night I could smell dust and dirt the whole night long. I don’t smell any dirt or dust with these new filters.

So if you have sleep apnea, do yourself a favor and buy these RespLab filters. Your lungs will thank you.

By the way, this filter belongs to the ResMed AirSense 10 AutoSet, so if that’s what you have, then this filter is for you. If you have another CPAP or BiPap machine, I’m sure they have a filter for your make and model.

So I’m diabetic now

I think it was 10 years ago when my doctor warned that I was pre-diabetic, and he gave me a glucose meter and my numbers went down because I basically cut out all the sweets and only ate vegetables and meat, no bread or carbs. Eventually after a few months of having good numbers on the meter, he told me I’m cleared and I don’t need to worry about it anymore as long as I continued to eat healthy. He didn’t prescribe test strips.

They tested my glucose in June of this year and it was 373. Yikes! My doctor prescribed Metformin HCL ER 750 MG tablets and I have taken it every day like I was supposed to for 3 months. I’ve cut back significantly on sugar and have eaten basically nothing but salads for dinner for 3 months. They tested my glucose again in September and it had dropped down to 228, still yikes. But the day of our appointment which was a week later, it had gone back up to 391. YIKES!!!! She thought the Metformin would help, but apparently not, so she prescribed Trijardy XR 25-5-1000 MG tablets.

Today I finally got the new medicine and the new glucose machine. It’s a True Metrix self monitoring blood glucose meter and it only came with 10 testing strips and 10 lancests, and I don’t know why they didn’t give me any more than that, but whatever. My life partner has the same machine and he buys testing strips from Amazon, so he gave me some of his for when I run out of mine in 3 days lol.

I tested my blood when we came home from the pharmacy, which was a little after 3pm and my blood sugar was 242. I took a Trijardy. Then I ate dinner at 6pm and did the test about 10 minutes later and it had dropped down to 147. So apparently the new medicine is going to help. I wonder what the side effects will be lol. Joking aside, I’m glad my blood sugar has gone down significantly.

Now that I know I have an issue with my blood sugar, I will slow my roll on junk food and try to eat healthier from now on. It’s hard because I REALLY love junk lol. I am a 50 year old man, I need to grow up and stop acting like a child who thinks he can eat anything he wants. I don’t have a grown up to tell me to eat my vegetables and that cookies and ice cream will spoil my dinner.

Actually, my life partner has told me you’ll spoil your lunch or dinner and I laugh because whenever I do eat lunch or dinner, it’s never enough and I’m still hungry. Perhaps if I filled my stomach with vegetables, which from what I understand breaks down slower in your stomach, which makes you feel full longer, then I might not be so hungry all the time.

I downloaded the True Metrix app called True Manager. I don’t have the True Metrix Air which apparently connects to the app with Bluetooth, but I can manually enter the data. I hope my blood sugar drops down to a normal range and stays that way. I will know on the app since it has a log and it tells me my average based on my log entries. They told me to do the blood test in the morning on an empty stomach, and then again after dinner.

CPAP Therapy and the myAir App

I started using my new CPAP machine in late June 2019 and I just wanted to post an update on my progress.

When Aprea Healthcare told me that I wasn’t going to get a BiPAP machine, I was freaked out because I have been using a BiPAP machine since 2005 and I thought the CPAP, which is called CPAP because it’s continuous air, BiPap is for bidirectional air, I though the CPAP was going to make it harder to sleep, but this new CPAP is actually not that bad. I am able to inhale and exhale normally.

The mask they included with my new machine was the nasal mask that I was used to, but this new mask was a bit different. The old mask had the cushion and pillow, unlike the new ones that just have the pillow. Here is my old mask with the cushion and pillow on the left, and the new pillows with 3 different nose sizes on the right.

I never had a problem with the old cushion and pillow masks, I could breathe through both nostrils just fine throughout the ramp stage (when you first start for the night, your machine starts out with a low pressure and that pressure slowly builds up to the final pressure over time to allow you to get used to the air) and beyond. This new mask was just too restricting for me. I started with the medium, which was installed on the mask frame when I received my new machine, and decided to use the large one on the 2nd night, but I still had a problem getting air during the ramp stage. I called and set up an appointment to tell them I’m having trouble and they told me I could get a different mask before the first 30 days are up, so I went in and they suggested this new nasal pillow which goes into your nostrils, and that one seems to work better, but there are side effects, like me pulling on the hose while I sleep which causes the air to leak.

The guy at Aprea Healthcare suggested I use the medium nasal pillow, but it’s too small and when I wake up, my nostrils are in agony because both pillows have literally gone inside my nose lol. I switched to the large, and haven’t had any pain. It REALLY sucks waking up in pain.

So this is my update. I’m doing good with my new CPAP machine. I wanted to post something so people will know that if you have been using a BiPAP for a long time and the Sleep Apnea company that sends you a new machine refuses to give you a new BiPAP, but instead only wants to give you CPAP, don’t worry, it’s pretty much the same thing. You can breathe easier (that was my pun for the day lol) knowing it works for me, and I was adamant about getting a BiPAP. If you find that you have trouble with CPAP, tell them and they will work to get you a BiPAP. It was like pulling teeth to get this CPAP, so I’m not even going to try to get something else.

Oh and here’s the myAir app screenshot. I love this app because before I didn’t have any data, this new machine actually sends the data to this app and now I can see what happens when I sleep.

My Sleep Apnea

My 15 year old BiPAP Machine left vs my new CPAP machine right.

I have severe sleep apnea. In the early 2000’s I was visiting my aunt in Simi Valley and another aunt in Lancaster, both in California and both aunts told me that not only is my snoring loud, but they could hear me gasp for air in my sleep. In 2003 I was waking up in the middle of the night literally gasping for air. I couldn’t inhale any air at all, yet I was able to exhale what air I had left in my lungs with no problem. I thought I was going to die, and this happened every night. I went to my doctor and they gave me an inhaler and they ordered a sleep study and a year later I got my first machine which is the BiPAP machine in the image above on the left.

My original sleep study was great because I was taking Ambien at the time, so I was able to go to sleep immediately. They only had me there for a few hours, and during that time they gave me both tests. They had me sleep without the mask, for I’m guessing an hour, then they woke me up to put the mask on me connected to a BiPAP machine and conducted the test for another hour, then I was released. It did take a year for me to finally receive my BiPAP machine, but it wasn’t an issue getting it to me. The only time the company that sold the BiPAP to me contacted me was when they were trying to set up an appointment to bring it to my house and to show me how it works.

Last year in February I had a new sleep study so that I could get a new machine since mine was 14 years old at the time, and I had the hardest time getting to sleep. First of all, the insurance company won’t let me take sleeping pills anymore because they think I’m addicted to them. I have sleeping disorders and insomnia. If I can’t sleep, I need something to help me to sleep, otherwise I’m up until 4am staring at the ceiling.

So last year I was at the new sleep study and the room was a nice room that resembled a bedroom in an office with a nice bed that looked and felt brand new, but it was a strange bed and the room was hot and I just couldn’t sleep. I was awake for about 80% of the study. It’s difficult to sleep when you don’t have anything to help you sleep and you have all these wires on your head and body and you are told to sleep on your back in a strange environment in a strange bed in a hot room.

They had me come back a few months later for the second part of the sleep study which was the same exact thing, but the only difference was I had to sleep with the mask on from the same exact BiPAP machine that I was currently using. The same thing happened, I was awake for 80% of the night, but this time I had a mask on blowing air into my nose and I was awake for it. It’s so frustrating.

So I figured I had failed the sleep study both times and there was no way I was ever going to get a new machine. I was surprised when this year I received a phone call to tell me that I had been approved for a new machine. This was the most difficult machine to get because they kept calling me to tell me they were missing documents from my doctor’s office and that I would have to wait for it to be approved. Then one day they called me to tell me that I’m not going to get my machine at all because they have cancelled me because they didn’t get the documents. I called the doctor’s office every time they called me, and every single time the doctor’s office told me that they did in fact send every document that was requested, multiple times. It took 3 months of getting these phone calls telling me they were missing documents. Don’t call ME to tell me you don’t have documents, call the doctor’s office. I think that is so unprofessional of a company to do that to a patient. Don’t involve me in this, just work to get me my machine.

So finally I did get the machine and it is a much smaller machine, but this one is a CPAP machine instead of a BiPAP machine. What’s the difference? Well, a CPAP machine is Continuous Positive Airway Pressure and a BiPAP is Bilevel Positive Airway Pressure. I was told back in 2005 that the BiPAP stood for Bidirectional Positive Airway Pressure.

My first night with this new CPAP machine wasn’t good. I was awake half the night. I think I was just not used to this new mask and it was constantly leaking air. Well, that was my fault, I didn’t have it on tight enough. The second night I had it on much tighter, but I kept turning the machine off because I thought the mask was too small because I couldn’t breathe through my left nostril. It came with a guide that you place on your face to see which mask you need. It told me I need the small, but it was too small, I feel more comfortable with the large one.

This new machine is connected to an online company that tracks my sleep, and the purpose is so the insurance company can make sure I am using it. If I don’t use it, then they don’t want to pay for it. That’s literally what the company that sold the machine told me. They are also watching to make sure I’m using it. They said I need to use it at least 4 hours a night for 3 months or so, and if I follow this, then the insurance company will pay for the machine until it’s paid for, and then the machine is mine to keep. But if I don’t use it, they will know. Why wouldn’t I use it? I have sleep apnea lol.

I am so thankful to have this new machine, because I was so worried my old one was going to stop working and that I would eventually die from my sleep apnea. I would rather die in my sleep not knowing I’m dying rather than be in pain, but I’m not even 50 yet, I’m not ready to die. My mother died at age 42 of a heart attack in her sleep, and I know for a fact she snored really loud. I think she had sleep apnea, and just didn’t know. What a way to go though. Let me get wrinkles before I die though.

My Diet Update

2018-08-04
A couple of weeks ago I weighed 265lbs and that was enough of a wake up call for me to want to lose weight, but I couldn’t actually start thinking about losing weight because I didn’t have the money to buy diet food for myself. My life partner decided on his own without asking me to call NutriSystem and they told him that their plan would end up costing somewhere in the neighborhood of $350 a month. That includes breakfast, lunch, dinner and snacks throughout the day. That’s WAY too much money for me to be able to afford on disability. If I’m going to do this, I will do it the same way I did in 2013 when I lost 70lbs. When I had the money I bought some Weight Watchers Smart Ones frozen dinners that included breakfast, lunch and dinner and if I want a snack throughout the day I’ll eat a banana. I also started going to the gym again and I started using the Noom app and my Fitbit.

The day I actually started my diet was last week on Tuesday, July 31, 2018 and I actually weighed 255.4. Today is Monday, August 6, 2018 and I weighed 250.8. I decided to tell the Noom app that my goal is 170lbs, and they want me to lose 2lbs per week, so my estimated date to get down to 170lbs is May 13, 2019. But, I’ve already lost close to 5lbs this week, so every week when I weigh in, that date will get closer and closer.

I didn’t want to keep updating my blog about my weight loss because I didn’t want to be a bother about it, but when I lost 70lbs in 2013, I kept a page on my old website that I updated with pictures and screenshots, so I think I will create a page on this blog that I will update. I think that adding updates will keep me motivated. So I’m going to go do that right now.