Broken Leg Update

Leg scar

It has been more than a month since I broke my leg (December 8) and had my surgery (December 16). In my last post I posted a picture of my leg post surgery with the staples still in my skin. They took the staples out 2 weeks after surgery, and this is what it looks like now, almost a month later.

I’ve been doing pretty good, but I haven’t really felt like blogging, or doing much of anything actually. I spend my days in bed playing video games on my PlayStation Vita that my partner bought for me for Christmas. I just bought Lego Batman 3, which I bought because it was on sale for $8, little did I know I already have it on my PlayStation 4. I try to avoid buying games I already own, but I guess this one slipped. I also bought Batman Arkham Origins Blackgate because it was on sale. Other games I have are Minecraft, Terraria, Lego Jurassic World, Little Big Planet, Q*Bert and Ratchet and Clank Full Frontal. I haven’t gotten very far in any of these games because of my addiction to Minecraft and Terraria lol.

The first night when I broke my leg I fell, and then again the night of my surgery, which I spoke about in my last blog post. I haven’t fallen since because my partner has babied me and wouldn’t let me get out of bed for anything. He has brought me all my meals and fed the dog and taken her outside. He’s been a complete angel.

Today I almost fell as I was leaving my bed on the crutches to go to the front door for therapy, but I put my right leg on the ground to prevent myself from falling, and even though I am not supposed to do that, it didn’t cause any pain. I felt tingling in my heel and my toes, and that told me I am not ready to start putting pressure on my leg, but I was only trying to prevent falling. The doctor told me that I can’t put any pressure on my leg until April. The physical therapist said some patients can do it sooner, some later. I heal fast, so I’m sure I’ll be walking with a cane in March, but I won’t hold my breath.

My leg doesn’t hurt as much as it did, but it does still hurt. I have chosen to stop taking my pain medication because it’s Percocet, and the last thing I need in my life is to become dependent on a drug. I would much rather have pain, than become addicted to pain pills.

tens unit

At Physical Therapy, they use a TENS Unit with heat, then I do about 6 or 7 leg exercises, then TENS Unity with cold, and then I go home. They sent me home on the first day with a long piece of rubber with knots on both ends for one of the exercises, and told me to buy a ball and a dog leash for the other exercises. I went a step further and also bought a TENS Unit so I could use that before and after with heat and cold. They wanted to sell me the same one they use on me for $60, but it only has 1 function and doesn’t have all these fancy schmancy buttons, and it also only has 2 plugs for 4 pads. This has 4 plugs for 8 pads. It’s a $200 machine, and Amazon sells it for $35 with free shipping, although I paid $5 for shipping to get it faster, and it comes tomorrow.

The one thing that has been on my mind is the gym. Even though I have a broken leg, I’ve been paying for my membership every month. I tried going there on Monday, the day they charged me, but they said I needed a note, so I brought them the note from the physical therapy office on Wednesday, but it was already too late. But that’s okay, I paid for 2 months I didn’t get to go, but whatever. It’s only money lol. That was said in sarcasm. They did freeze my account and asked me when I would be coming back, and both my partner and I said in unison April 15th, to which I replied JINX, but I guess he didn’t get it because I said it alone. Oh well.

My partner will be giving my bicycle away because we are going to try to get me a adult tricycle because he thinks 3 wheels are more stable than 2. Little did he know, I’ve wanted a tricycle for years, so this works out. I stripped my bicycle of the things I didn’t want to give away so I can use it with the new bicycle in April. I will also be changing my route to the gym so I am riding in neighborhoods instead of riding on Hughes Lane, which is a busy street. I normally try to stick to neighborhoods, so I don’t know why I rode on Hughes. I guess it was just easier, but I will be changing my route, that is if I’m allowed to go back to the gym at all lol.

Anyway, I’m getting better and I will most definitely be filming the TENS Unit on my leg to show how it moves my muscle, because I’m messed up in the head lol. So look forward to that. Tootles!

The nerve of some people

nerves-facial-morris

The subject of this blog is not a complaint about someone’s character, rather a discussion on nerves, more particularly the nerves in my face since my Parotidectomy surgery in November.

You can read the details of my surgery in the link in the previous paragraph, or I can give you the cliff notes version.  I had a stone growing in my saliva gland and it had to be removed because it was causing a massive amount of pain.  It was removed by a surgeon at the Kern Medical Center on November 20th 2013.  It left me with a huge scar and a golf ball sized chunk taken out of my face.  It has been numb ever since, but the feeling is coming back, more importantly pain is coming back.

You see all those nerves in the diagram above?  Everything is connected.  Even though most of my face is numb, I can feel electrical impulses when I touch certain parts of my face.  If I touch my jaw line near my chin, I can feel electrical impulses in my earlobe.  If I touch anywhere near the incision area, I can also feel it all the way up my ear.  If I touch my earlobe, I can feel it in the spot on my jaw line near my chin from before.  There are certain areas that even the slightest touch can cause pain from the electrical impulses.  Even blowing on my skin can cause the feeling and possibly pain.

I’m not bothered by it as much as I probably should be because I know that my face is still healing.  The numbness is still there, but it is going away.  It’s like that pins and needles feeling you get when you sit on your foot for too long and your foot goes numb and then you get the pins and needles, although the pins and needles only shows up when I touch my face, and it doesn’t show up in the exact spot that I touch.  It’s a very strange feeling, but I am getting used to it.

The other day my partner touched my face and I recoiled in pain and he was a bit shocked at my overreaction, but he didn’t understand what I am feeling.  Heck, I didn’t quite understand it until now.

My last appointment with the surgeon at KMC was yesterday and he told me that there are more stones growing in the saliva gland on the left side of my face so eventually that will need to be taken care of like the right side, but that may take years to happen.  I am not going to worry about that until the pain comes from that.

Speaking of pain from nerves, am I having massive tooth pain and need to visit the dentist in May when my dental insurance kicks in again.  Right now all they will cover is emergency extractions and right now I am having an emergency in 3 or 4 teeth and I would much rather have fillings than more extractions.  I am using a sensitive toothpaste, but it doesn’t seem to be helping me very much.  I’ve flossed and flossed and that only makes it worse and my teeth are so jagged that they cut the floss in half and I can never get the floss out of between my teeth.  The Listerine helps numb the pain when I finish brushing, and sometimes I just swish with it just to numb the pain 3 or 4 times per day.

It seems I am always in pain.  I feel like I was the worst person in the history of humanity in a previous lifetime and I am paying for the bad karma in this lifetime.  I sometimes feel like I am earning some of my karma back by being a good person, but it doesn’t help at all.  I wonder who I was and what I did to deserve this.  Oh well, it doesn’t do any good dwelling on the past, especially a past I don’t have any memory of.

Anyway, I am looking forward for my next round of pain to end at least before my birthday lol.

Until next time…

Parotidectomy Surgery Complications

glands

It has been 3 weeks since I had my surgery and everything seems to be healing well.  My scar isn’t red and it isn’t too noticeable, except for the scar from the hole from where the tube was draining the fluid for 2 weeks which is quite visible, but disappears with a Band-Aid.

My face and ear are still numb, although the feeling is coming back slowly, but it is coming back.  But it still feels very strange.

The only thing that seems to have gone wrong is that I still have a saliva gland that seems to still be producing saliva with nowhere to go.  According to the image, there are three glands.  Parotid, which was removed, Submandibular and Sublingual.  The Sublingual gland is under the tongue, no problem.  The gland that is still producing saliva is my Submandibular gland which is below where the Parotid gland used to be.  It is still producing saliva, but it is not releasing into my mouth.  Instead of releasing into my mouth, it stores the saliva.

This is a really big issue because that is what my Parotid gland was doing.  It wasn’t releasing the saliva, so I was having to push (or milk) it out of the gland and into my mouth.  I have been trying to do that with this gland, but it is not releasing into my mouth, instead, I can feel it releasing under my skin.  I can tell because it tingles.  I don’t want it to release saliva inside of my body, but if it doesn’t get milked, it just gets bigger and bigger and next thing you know I will be rushed to the emergency room because of how painful it is.

The surgeon told me when I came back last week to have the tube removed that it was just some saliva that will be absorbed by my body, but I had no idea it was still producing more saliva.  I only know it is producing more saliva because I could feel it getting bigger and under more pressure when I ate some chocolate the other day.  Sweet and tangy are what seem to generate a lot of saliva for me, which over the years has been a major issue for me because when I start generating a lot of saliva after drinking orange juice, my saliva gland would get backed up and it wouldn’t release the saliva into my mouth.  That’s what I was trying to get surgery for, forget the stone, I want my saliva to be able to release into my mouth as it normally would without me having to milk it.

I can live without orange juice, which I have lived without for years because I know that sour causes this issue.  The one thing I don’t think I can live without is sweet, because I have a sweet tooth.  I love sweet flavors, such as sweet tea, or sweet coffee, or sweet oatmeal.  I can live without chocolate and cookies and so on, but I can’t avoid other sweet flavors because there is almost always something sweet.

My next appointment with the surgeon isn’t until March, but my next appointment with my regular doctor is next month and he will advise me on what to do.  I just hope by then it isn’t too painful.

I was hoping that my last post on this issue was my very last post.  I guess I jinxed myself by saying it was my last post.  This seems to be a pattern with me though.  I say I will never have to worry about something again, but then it comes back and I have to worry about it some more.  It’s a “if it can go wrong, it will” type of thing.  Murphy’s Law.  Why does Murphy seem to always be hiding in the shadows cursing me?  Darn you Murphy!

I will certainly update this issue if it becomes too unbearable and I end up in the ER or when I see my doctor in January, whichever comes first.

One more week with a tube

parotid gland surgery week 2

Last week on November 20th I had my surgery to remove my Parotid gland because I had a stone that was basically the size of a marble which was preventing saliva from being released into my mouth.

If yesterday was not Thanksgiving, today I would be at the surgery clinic getting the tube removed from my neck.  Since the surgeon is only in the surgery clinic on Fridays, I will have to wait another week to have the tube removed.  It’s been more than a few days since anything drained into the tube, so it’s not doing me any good being in there.

I’ve had more pain in the last few days from the swelling than I had when I first had the surgery.  There didn’t seem to be too much swelling in the beginning, it only started swelling after 5 days.  Today it still seems swelled up, but the pressure isn’t bothering me.  Then again, the day isn’t over yet and I’m thinking about getting the ice pack to help the pressure.

It doesn’t seem to be as red today as it has been so that is a good sign.  When I say red, I don’t mean the sutures, I mean my cheek and ear.  It seems from the picture to be a good healthy color.

Next Friday can’t come quick enough though because I really can’t wait for this tube to be removed lol.  It’s more embarrassing than anything.  Last night I went to our neighbors house and totally forgot myself and I went over there with just my shirt and jeans.  I should have remembered to wear my hoodie so I could have covered my head and my tube.  It didn’t freak anyone out except for me lol.  Oh well.

Day 5 After Parotidectomy Surgery

surgery scar 5 days

My surgery was on November 20th so it has been 5 days and I thought I would take a picture to show my progress.  It appears that my ear is swelling up and my face is a lot redder than it was.  I had just gotten out of the bath tub when I took the picture on the right, but it has been more than an hour since then and it is still just as red.  All of the red area is completely numb.

The way the doctor cut my face and stitched it up was perfect.  He followed my ear all the way down and went behind my ear lobe before going down following the line of my beard.  Genius!  In my opinion, he did an excellent job.  I saw pictures of other people who had the same surgery and their incisions didn’t look this good, so I feel very blessed that I had such an artist.

My face has a golf ball sized hole in front of my ear where my gland used to be swollen.  I figured it would have filled in by now, but it is still dented.  I’m sure it will fill in, I’m not worried about that.  It is still numb too.

The only thing that isn’t numb is where the tube is sticking out.  I don’t really care too much for having a tube sticking out of my neck.  It would be awesome if I didn’t have to have it in me for 2 whole weeks.  It was supposed to be removed after 7 days, and they even wrote a note on the paperwork that said “Follow-up KMC ENT Clinic next Friday.”  Well, that is the day after Thanksgiving and they are closed that day.  The reason they said Friday and not Wednesday is because that surgeon is only in the surgery clinic on Friday.  I guess he is the only one who can take the tube out so I will have to wait until December 6th.

I have been catching up on my sleep.  Today I woke up to the sound of my alarm on my phone to tell me to take my pills at 8am.  I had other pills to take at 10am and it had to wake me up again for those.  Then my partner woke me up at 12:30pm and I decided I wanted to get out of bed.  I don’t like sleeping the day away lol.

Another good thing about this is that I am losing weight again.  That’s not always a good thing because the reason I am losing weight is because of the medication, but I am using that to my advantage.  I am normally always hungry, so since I don’t feel too hungry all the time, I am eating the same amount of food I ate when I lost 70lbs.  I have been eating a bowl of Honey Nut Cheerio’s for breakfast with a banana and Silk Vanilla Light Almond Milk.  I ate a Yoplait light Strawberry yogurt at 10am which is my usual snack time and I ate a Weight Watchers Smart Ones meal with Fettuccine Alfredo and Chicken.  It is my 3pm snack time now so I will have a banana, then at dinner I will have another Weight Watchers Smart Ones meal.

When I stopped losing weight in July, I was still eating this same diet, although I was eating a little bit more food and I wasn’t getting a lot of sleep which seems to be the key.  I am getting more sleep now and eating the right foods, so I am losing weight again.  When I stopped losing weight I was 192lbs, but then I went back up to 202lbs and fluctuated between 202 and 210.  Last week when I had my surgery I was 208.  Today I am 199.8.  So I will just keep doing what I am doing to help get me back down to 192.  Whatever it takes, right?  This was the boost I needed and hopefully I will continue to lose weight.

Well, back to bed I go.

Recovering from Surgery

I am still recovering from surgery.  Been laying in bed reading the 12th Xanth book “Man From Mundania”.  The meds make me very sleepy though, so it’s hard to concentrate, but I do my best.  My face around my ear and my ear are still numb and it feels very odd to be numb and itchy at the same time.  I’ve never had surgery so naturally I had no idea what this would be like.

There is a tube sticking out of my neck to drain the fluids that I was only supposed to have for 1 week, but since the doctor is only there on Fridays and they are closed the day after Thanksgiving, I have to have the tube for 2 weeks.  It doesn’t bother me, but I was hoping to not have it any more than I have to because it hurts sometimes when I accidentally pull on it.  It’s also very disgusting lol.  We usually go to Golden Corral on Thanksgiving because it’s easier to have them do all the work, but with the stitches and the tube, I just can’t see me walking around a restaurant filling my plate without feeling like I’m being stared at and judged.  I already had someone blatantly staring at my stitches while talking to me and seeing the disgusted look on his face which made me never want to leave the house again.

I honestly don’t mind the cooking and cleaning, but since it is just the two of us and we really don’t need to cook that much food, it doesn’t make much sense buying and cooking so many different dishes.  I think if we can just get some chicken for the crock pot, a couple of potatoes and a couple of yams and a pumpkin pie we should be fine.  That’s really all I care to eat anyway.

I haven’t been eating as much as I normally have been.  I don’t know if it’s the medicine, but I’m just not hungry which means I am losing weight.  Yes, I have literally lost 6lbs since Wednesday.  I love knowing that I am losing weight, but not because the medicine is making me sick, but because I’m eating right and trying to lose weight.  I don’t know if that makes sense.

Well, I really just wanted to do a status update, but I was up to 3 paragraphs and I figured it was big enough for a blog post so I switched over to blogging lol.  I’m finished so back to bed for me.

Surgery Day

operation

Tomorrow is the day I have been waiting for since August.  It is the day that my parotid gland will finally be removed and I will no longer suffer from the pain that it causes me.

There have been some good days and there have been some bad days, mostly bad days.  There was a whole week when I didn’t have any pain at all and I started wondering if perhaps I should just not have the surgery and live with it, but then the pain would come back and that would confirm that I do in fact want to continue with the surgery.

I have been quite depressed lately, not just because of the pain that I’ve had, but also because of the fact that I am having surgery 1 week before Thanksgiving and I will have a fresh scar on Thanksgiving day.  If we were staying at home or visiting family that wouldn’t be a big deal, but we always go to Golden Corral for Thanksgiving.  It’s just easier and less expensive.  I’m not depressed about the fresh scar anymore because I’m sure it will be fine in a week.  I don’t know that for a fact, but I’m sure it will be fine.

I will have a tube (I don’t know how they are going to do that, will there be like an IV port coming out of my neck?) draining fluids for 7 days which will be removed the day before Thanksgiving.  I can deal with that.  I mean, it’s only a week, right?  I don’t have any plans on leaving the house during that week.  I plan on lots of bed rest and catching up on my reading.  I’ve neglected my Nook for such a long time, it’s time for an excuse to read a book or two, or three.

Anyway, I’m not scared or nervous.  I’m sure it will all work out and I will take pictures when it’s over and more pictures next week when the tube is removed the day before Thanksgiving to show how much I’ve healed.

Depression About Surgery

scarIn August I went to the doctor to get help for an issue I was having with my parotid gland on my right side.  I had a cat scan with contrast and they found several stones and the only way that I can get them out is with surgery to remove the entire gland.  The problem is, it will leave a huge scar on the side of my face that will look like the image to the left.

Most people wouldn’t want to have a huge scar on their face of all places.  I mean, a scar on your arm or your leg or stomach is normal, but your face, that’s like the one place that you want to keep scar free.  Well, without thinking I said that if this is my only option other than living with it, then just do it because I can’t continue living with this horrible pain.

I still feel that I want to get the surgery, but I have also sort of gone into a depression knowing that I’m going to have this on my face soon.  Not only will I have this on November 20th, but I will have a tube sticking out for 7 days which means it will be removed the day before Thanksgiving.  I will have a fresh scar during the holidays.  I know that the holidays are just like any other day to me, but I still don’t understand why I couldn’t have had the surgery by now so it’s all healed up BEFORE the holidays.  I mean, this started in August and we’re in November now.

I’m sorry, I’m scatterbrained.  I’m just going through something right now.  I know it’s all mental, but still, I just don’t want to have to be out in public with this on my face for Thanksgiving, especially since we always go to a restaurant for that holiday.  I know it’s probably silly and you are thinking oh get a grip, get over it, but wouldn’t you be worried about this too?

This is going to go one of two ways, one I will be fine and I won’t think it’s that big of a deal and we will go out and eat and it will be fine.  Or, I will be so depressed that I won’t be able to get out of bed until New Years.

The issue here is this is my face, which is the first thing that people see.  People judge you as a person before they even talk to you.  I know, RuPaul says it’s none of my business what other people think of me and I usually think that too, but it’s my FACE!  Why does this have to happen to me just before Thanksgiving, or at all for that matter?

As if I haven’t been through enough in my life with being diagnosed with HIV at age 21, then upgraded to AIDS at 23, being diagnosed with having Parkinson’s, Scoliosis, being homeless as a teenager just because I was gay and being abused throughout my childhood.  It just seems like I am a target for something messed up.  Why me?  Why do I have such a messed up life?

Well, I guess I should just be thankful that I am still alive despite the fact that I was supposed to die in 2000 and nearly died in 2002 from Steven-Johnson syndrome, which is another messed up thing that happened to me lol.  Eh hem, as I was saying, at least I have a roof over my head and I’m somewhat healthy and not homeless.

I suppose it could be worse.  I could be homeless and not have any medical insurance and would have to just live with the pain for the rest of my life.  So I guess I should be lucky that I can have the surgery.  But I still can’t help but feel depressed about the scar.  UGH!  Life sucks.

Parotid Surgery

A couple of months ago I mentioned that I had pain in my saliva gland aka my Parotid gland.  I went to the doctor who gave me an anti-biotic medicine and said I may need surgery and even asked me if that was what I wanted.  He sent me to Kern Medical Center and that surgeon told me that I had Sialolithiasis which is apparently a very common thing.  I’ve never heard of it.

The surgeon at KMC gave me some options, have it removed with a scope in L.A. or have surgery to remove the entire gland.  My partner didn’t want me to have it removed because it would leave a huge unsightly scar.  He said we could go to L.A. to have that procedure, but then we discussed how many trips we would probably end up making, so he changed his mind.  See, I told the surgeon that I wanted to have him perform the surgery because I knew it would cost money to drive to L.A., and you know that I would have to come 2 or 3 times.  But the surgeon today told me that the stones are too big to be removed with a scope anyway.  The scope would fit in the, I’m just going to call it a vein, but the stones were way too big to be pulled out of said vein.  So surgery is my only option.

My surgery will be in late November, which just happens to be 1 week before Thanksgiving, and I will have a port in the back that will drain into a container which I will have to be mindful of.  I will have to keep that on me for 1 week and then he will remove it.

On one hand I’m very excited to finally have this removed to fix my problem, but on the other hand I’m not looking forward to having a huge scar on my face lol.  I mean, if that’s what it takes to end this constant agony then so be it, but why did it have to be my face?  Why couldn’t the gland be inside my mouth?  Or why couldn’t the stone be somewhere in my stomach where I never have to worry about people seeing my scar?  Why of all places did it have to be on my face?  I mean, I’m not a model so it doesn’t matter, it’s not like I’m going to lose any modeling gigs, but still.  You never want to do something that will put a scar on the first thing people look at when they see you, or bring too much attention to yourself when you are trying to stay invisible.

Well, it’s inevitable, so there is nothing I can do but learn to live with it.  I’m sure the scar won’t be too bad and I can use scar creams that will make it disappear, so there is something to look forward to.  I’m just glad the pain will finally be gone soon.

So until November…